Sorry I haven’t been posting very much. That’s the thing with CRPS in your hands, typing can really hurt. I’m looking at ways to sort that out. Smaller posts, software that types what I say etc. Mostly typing has’t been too difficult for me, (starting to hurt now) In fact I have found it to be great physio and part of how I reclaimed my hand. BUT… I have been taken off of my pain killers (Tramadol) and put back onto Endep (amitriptyline) so that it works along side my maxed out dose of Lyrica, 600mg/day. I was supposed to be on Endep anyway, but it and Tramadol have a tendency to cause you to have fits. I wasn’t too interested in that. To be honest, I was happy to get rid of the Tramadol because in a matter of 5 months it had made me high on 50mg when ever I needed, to not doing too much at all on 450mg/day.
I have started to see a new Gp and he agreed that the Tramadol was only giving me bad side effects and took me off of it. But here is the catch… I get nothing to replace it with because apparently, 30 is too young to be hooked on Opioids. It wasnt opioids that I wanted anyway. Its a solution to manage the pain that Im after. I will say that I was a little panicked about leaving with nothing for breakthrough pain. Especially as I have no desire to go to my local hospital if my pain got out of hand. They only gave paracetamol/codene for my burn injury. Im sure they will break out the good stuff for that pain that they cant see…. The next hospital is 100km away, so Ill be asking what to do when I go back this week.
So once the shock had worn off, I decided to give being free of Tramadol a go. Its been about 3 weeks now and the withdrawals are gone and I feel so much better within myself. It seems that the Tramadol was adding to my problems more than helping. Although they were helping more than I thought. But there is no going back now! and I have stumbled onto some reading on going without Opioids and I am seeing not taking them as possible. But then I’m typing this a 4am because I’m in so much pain that I cant sleep. This has been the norm since I got off of the Tramadol, and Endep isn’t helping with sleep the way it should because the pain is so bad. Im just coping with the pain but It cant go on like this.
Im off to Adelaide in just over a week to see the pain specialist and organise the next Ketamine Infusion. I cant wait really. 3 days of rest, sleep and no pain. Heaven!!! Plus Im seeing my new Neurologist and also my Physio. I plan to come home with some solutions to my pain. Once al of my appointments are over, Ill be going to spend a weekend at my friends place and attempt to do something for my B’day. Its my second attempt at a 30th birthday. Last year I was in bed and in hell.
Ok, I’m in a lot of pain now so gotta stop. Ill post more, I promise. Even if its short and sweet. 🙂
Id love to hear your thoughts on my situation or if you have experienced the same.