I Love this this one and wanted to share it here. Hope your all well. xx
Can I still love winter? I hope so. CRPS is so hard on the body in nice weather; hot weather was harsh and coped by hiding inside where it was cool and going to the beach in the evening and soaking my body back to a comfortable temperature. Now my second winter with CRPS is here and I’m not holding up to well.
Last year I just thought it was the natural progression of CRPS. The disease seemed to spiral downhill so fast. I was struggling to walk, I thought I was going to end up in a wheel chair, My neurological symptoms were worsening, I couldn’t hold a knife and fork and there were days on end where I suffered at home in misery. But then I had my first Ketamine infusion and then another and things got better. Looking back around the same time winter broke and along came spring.
So it wasn’t all just my body getting taken over by CRPS, it was also winter. Yay!!!! Something to look forwards to each year… Not.
So here I am at the beginning of winter and my body is not happy. It will be interesting to see how I hold up. The only difference this year is that I have more of a hold on how to cope. I love winter so much. I live on the South Australian coast in a beautiful part of the country and I love how fierce the ocean is during winter. I love rainy winter days where I snuggle up on the couch drinking tea and watching movies. I’m sure I will get a few of those days this year.
I’m determined to still love winter and to make the most of my time even though I might be in hell pain wise. I’m studying at the moment and hoping to start my Bachelor of Health Science (Nutritional Medicine) and I’m determined to blog more. At the moment there are days where I’m scared of what’s to come but I’m trying to make the most of things. It wasn’t all bad last winter after all.
So that’s where I’m at, at the moment. I’m ok though. I’m not looking for sympathy; I think others deserve it more. I would love to hear how all of you cope with winter?
Hope your all pain free xx
Stupid/funny little injury today. I went to say hello to Cocky, our pet Sulfur Crested Cockatoo tonight. He is my boy and had been upgraded to a bigger cage this week.
I went to help him down to where he eats and sleeps. He lost balance and grabbed/bit my CRPS arm. f***!!!!! I screamed, he flew down and while I was sobbing in pain he turns to me and screams “your a bastard” and then throws his head back and cracks up laughing at me. How sweet!
How could you not laugh but I’m paying for it now. lol I have two very red and raised patches above my wrist and on my burn area. I was just feeling better after spending the day in bed.
I hope your all doing better. xx
Something that I noticed early on in my life with CRPS and Chronic pain was that my pain and other sufferer’s pain would always rise during a full moon. I’ve always found that a Full Moon effected my moods and sleep so why not pain? After all how do you also explain our pain being greater at night than during the day? Isn’t it equally plausible that the moon cycle could effect us in a similar way? I did a little research and found that I might have been on to something. I read how people with arthritis often experienced more pain around a full moon and that epileptic’s had more seizures.
I am in an Aussie and Kiwi Facebook group that chats on a daily basis and it was due to us all being sick with pain flares and my noticing it was always a Full Moon that all of us were online complaining of a shocking flare. So for the next few months I didn’t allow myself to know when the next full moon was unless we were all syncing our flares again. After all its only natural for women to sync up. Lol. Sure enough there was a pattern and over time even the non-believers in the group now whinge about Full moons. Especially one person in particular, who bullied me for my theory and is now the first to announce the arrival of a full moon as if it was him all along who brought it to the group. Oh well!
TODAY 14th MAY 2014 IS A FULL MOON HERE IN AUSTRALIA
Basically it’s all to do with Ions in the air that are either positively or negatively charged. During a Full Moon the air is positively charged and this causes a hormonal reaction in our bodies.
“Ions are floating in the air around us all of the time and have either negative or positive charges. Changes in their concentrations or in the ratio of positively to negatively charged molecules can have remarkable effects on plants and animals. It is known in science that ion depletion is the source of a wide range of human health problems, both mental and physical.
These air ions are important to you because if they have a high proportion of negative ions in the clusters you will feel lively, uplifted and enthusiastic. Too many positive ions in the clusters will have you feeling depressed, lethargic and full of aches, pains and complaints.”
Read the full article at www.quantumenergywerks.com
So what do you think?
I hope the Full Moon is kind to you. xx
In the time that I have been suffering with chronic pain I have always looked for ways to treat my pain in a more natural way. Things like warm wheat packs and Magnesium are in my go to treatments when I’m sore and uncomfortable. I never substitute natural over modern medicine, but I do believe in using natural alongside modern medication.
This is something that I plan to talk a lot about and I have just come across an article called 7 Simple Steps To Relieve Pain (Without Taking Drugs) by Mind Body Green that list’s a few good ways that we can try in reducing the impact of our pain. For example,
“4. Use nutrients and herbs on a daily basis to reduce pain and inflammation. including bromelain, fish oil, quercitin, curcumin, boswellia, licorice (use “DGL” if you have high blood pressure), devil’s claw, ginger, and Sam-E. There are many products on the market that include a combination of these ingredients. Ask in the supplement section of your local major natural foods store for help.”
I for one am a big fan of Curcumin and plan to share more about this chemical found in turmeric that is great for easing pain. It’s also a good excuse for eating Indian food. I’ll find any excuse really. LOL.
This article is well worth the read, I’m not a doctor, so of course it is best you chat with your Dr about anything you try. Even if you can take just one thing from this article then it’s worth the read.
Hope your all having a pain free day. xx
Brain fog, medicated blur, or just pain dumb. Thats how I feel most of the time since this darn CRPS came a knocking.
I do believe that this time can be used wisely and one of the things I want to be doing is studying to give me a career when this hopefully settles a bit. I want to be studying Nutritional Medicine and the thing that’s held me back is my fear of failing because I couldn’t get my head around anything. I posed the question asking my CRPS friends on Facebook how they coped and one thing we all agreed on was that a test run on a short course would be the best Idea. Then the topic of FREE online courses came up and I was given some good leads on websites that provide FREE ONLINE COURSES. I’ve already signed up for Food, Nutrition & Your Health (FoodHlth) through open2study.com and will be having a study day tomorrow.
Also recommended are the following
I’d love to hear about any courses you enroll in.
Happy studying and happy pain free days. xx