I found this fantastic Pain Scale the other day and thought that I would share it with you all. I do not know where it originates from but it is too good not to share. I have in the past found it hard to find a good definition of each level of pain. For my own pain diaries that I have been asked to keep by my Doctors, I have merged many together and made do with what I had. I like that this one justifies what is minor, moderate and severe pain.
If anyone knows where this chart originates than please let me know. I like to give credit where credit is due. 🙂
I just sat down to my computer and realised that its the first of March and two days past my one year CRPS anniversary. Oops!!! Oh well. I did go out for dinner tonight so Ill go back and dedicate tonight to my attempt at celebrating. lol.
I realise now that I had CRPS much earlier than Feb last year. I was injured in a burn injury the October before and put any symptoms down to healing and nerve growth. I just didnt have a flare until three and a half months after the original injury. It came as a real blow to me because I had just gotten my life back on track, started to remove my compression garments, had taken up running and gone back to work and was looking at moving to Melbourne to start over with a new perspective on life.
What a year its been. The worst I have had by a long way, but it hasn’t all been bad. I have made some fantastic friends through CRPS, become much closer to my family and friends and have a far happier outlook on life. I just don’t sweat the small stuff anymore.
Im spending next week in Adelaide so perhaps I’ll go out to celebrate the best I can. For my burn anniversary, I went to my favorite restaurant with the family and friends who had supported me. It was a fun night, as I had wanted. I didn’t see the point in dwelling on what had happened and rathered I celebrate the good that came from it and how lucky I was compared to some. I would have celebrated the other night just the same. If only I had remembered!
Im mostly positive about my burn experience and it triggering CRPS, but one thing I cant let got of is my shocking initial treatment on the night I was burnt.
my experience at the hospital was disgusting. I was given Panadene forte ( Paracetamol 500mg & Codeine Phosphate 30mg) for my excruciating pain. No morphine, just a couple of useless tablets that would have taken half an hour to set in. I also had to wait an hour for the dr to arrive. by then I had collapsed from the pain and had hypothermia. He covered me in silverderm and got a lot in my eye, later found out it could send me blind. I should have been sent to a burns unit in Adelaide and instead he decided to keep me in over night and send me home to heal. I was also given not tetanus and not cleaned up. I was covered in soot, paint and burnt hair until I want home the next day, not cleaned up. I was black all over like.
Because of the pain they were giving me ice packs for my wrist. The rest of my burns were deeper and the pain had eased because the nerves were gone, but my wrist had some lesser burns that were agony until lunch the next day. I was bullied by the next nurse that came on because I was interrupting her night shift by asking for cooler ice packs. and by 1am i couldn’t take it any more and was screaming for pain relief. I was informed that they had to call and wake the dr and that it was incredibly inconvenient for them and him. I was given one endone (Oxycodone Hydrochloride 5mg) and told i wasn’t having anything until 9am and left to it. I managed a little sleep after this… but then I woke up. The Dr checked me at lunch time and had me wrapped loosely and told to see the community health nurse in 2 days. And off I went home.
I spoke to the community health nurse the next day and my dressings had fallen off and i was worried so she had me come in to see her. She was horrified. my arm was so swollen and my face was left uncovered and ugly. So she sent me back to the Dr and he was furious that I came in and that the nurse went over his head and sent me in. again I was told to go home and let it heal. The nurse had me in daily and by day 4 she had sent photos to the burns unit because it was looking horrible and i was starting to look bad. I was immediately put in the car and driven 350km to Adelaide and into the burn unit that night.
While I was in Emergency I was told of repeatedly for not going straight there and I finally broke. It wasn’t my fault. I was too sick to make decisions for myself. What did they expect? Because of this I missed out on initial care, my burns were considered a “dirty wound” and I was just sick from the infection. I had issues with proud flesh after surgery. I have scaring that I should not have had and I was blamed by medical staff in my home town for getting them into trouble with the burns unit. Oh and because of all this I had damage to a nerve in my hand and it triggered Complex Regional Pain Syndrome and have chronic pain through out my body and still cant work.
Im just angry because it wasn’t my fault and why was I put through this? I’m really pissed off. This is the part I struggle to see anything positive in. Why wasn’t I worthy of the care I needed. Why wasn’t I given pain relief? Why did I have to suffer like that? It just makes me angry!