MEOW: My cat is the best medicine

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Ok, sure her purring and weight isn’t ideal on a bad day where even my clothing can hurt my poor body, But I love my little girl and the comfort that she gives me is worth that extra bit of discomfort. I’m in pain anyway!  On a not so bad day, I feel blessed that I am “worthy” of her cuddles. Yeah, any one with a cat knows what I mean by that! On nights when I’m flaring Molly will come to bed with me or climb my window screen until I hobble out of bed to let her in. She has taken to sleeping next to me rather than on me since I’ve developed CRPS. On a bad day she sticks by me and has taken to leading me to the couch and waiting for me to sit before lightly climbing on. She seems to know before I do that I need to rest. Although, I do think she loves having me there to nurse her all night long.

IN THE MEDIA: Chronic Pain, 7.30 South Australia

“It is a common condition, patients suffer from it, doctors treat it but Medicare doesn’t acknowledge it. It’s chronic pain. But what causes it and why do traditional drugs seem to have little effect?”

pain 730

This is the introduction to a news story that was shown on our state edition of the Current Affairs program 7.40. Its really exciting that this show has done a few stories on Chronic Pain already this year and although not exactly about CRPS, It still relates back to the treatments and the health system that I and many other Australians rely on.

I posted about the first story here. Australia’s Pain Epidemic

This story by Mike Sexton and shown on 7.30 South Australia, on Fri, 21 Feb, 2014.  Duration: 6min 13sec. It starts as stated above and then leads into some horrifying, yet unsurprising statistics that Medicare (Australia) has found that up to 5% of patients in Gp’s clinics are seeking relief from Chronic Pain. It again mentioned that most Australian’s suffering from Chronic Pain wait 2-3 years for a placement in a pain treatment facility. This leads to Gp’s prescribing more and more opioid pain Medications and leads to dependency. Clearly there is a cycle here that must be broken.  I’m hoping that the Website will post a manuscript to this story as it has done in the past so that I can post it.

One exciting thing bit of information that I learnt from the story is of a local research project happening right here in South Australia at the Bionomics Facilities in Hindmarsh, is a focus on Ion channels and their role in Chronic Pain. The story went on to report of an investment of 170 million dollars (Aust)  being made into this study by Merck & Co. That is pretty exciting really. I went onto the Bionomics Website and found the following:

“Bionomics has entered into a collaboration with Merck & Co. to develop a novel oral treatment for chronic pain. Chronic pain is a severely debilitating condition with a large unmet medical need. Current analgesic medications which include anti-epileptics, anti-arrhythmics, opioids, NSAID’s and anti-depressants, are either ineffective, associated with a range of dose limiting side effects or have the potential for abuse and addiction. Our novel treatment which is expected to deliver greater efficacy and safety than existing pain medications is directed towards an undisclosed target that has been strongly linked to chronic pain in humans.”

www.bionomics.com.au/research-development/pipeline/cns-central-nervous-system

Well Im off to investigate further and see what else I can learn about this trial and even if I can participate in any way. 🙂

 

Some Fun With Pain Charts!

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Pain is no fun! Clearly, It really hurts!

How much more fun is it when you compare your pain to Lego?

I found this pain chart recently and thought it was the perfect tool to make things just that little bit more cheerful. I believe we have the option to make the most of a situation or to just be miserable about things for the sake of it. But being miserable kind of sucks so who wants to do that!  Adding a little cheer to these situations eases the misery and is by far the better option.

Today my pain is so far sitting at a 6/10. My leg is bloody sore and getting worse, but I’m choosing to ignore it by distracting my self with fun things like this chart. I’m hoping to get my pain under control so I can go out and play in my veggie garden for a while. Sunds borring? two words: Fresh Strawberries! lol. That’s what I look forward to each day, even if its just a little wander around admiring how things are growing.  I hope you also have something to motivate you each day. xxx

RSD on The Doctors. OMG we are in the media at the moment!

http://www.thedoctorstv.com/videolib/init/9967

The Doctors 10/2013
Facebook has been a buzz with the 3 part story about this woman with a severe case of RSD and is full of great info one what RSD is and what it does to us. It also looks at the woman’s story on living with the disease and advice given to her on the diet that she needs to assist her body lower inflammation.
The first part of this film is what all of our family and friends need to see to get whats wrong with us. Im just trying to pin a few of them down. lol. I posted it of Facebook and as suspected most people ignored it, but there was a few that watched it and in come the sympathy and horrified comments. lol. No my limbs do not look like that!Im having trouble loading the footage onto the post but ill work on getting it there, but for now on the above link is to the story on the website for the show

The Secret Life Of Pain, featuring CRPS

Last night I was switching through the channels on the TV and come across a Documentary on pain called The Secret Life Of Pain, made in the UK by the BBC in 2011. I decided to watch hoping to learn something and was hoping for a mention on CRPS. I wasn’t disappointed at all. The film talks about pain in many ways from the woman who feels no pain at all (I was a little jealous lol), to another with CRPS in most areas of her body.  My mum was also watching with me, so as the CRPS girl was being introduced I was saying to her that I was sure she had CRPS and then they said it. It was Awesome to hear those words and to have a member of my family see what I was going through, through someone else’s experience. It was also a great insight into pain in general.

I originally posted the full film on this post, however it is no longer available through that link. So here is an alternative way to watch the Docco in full.

http://topdocumentaryfilms.com/secret-world-pain/

 

Hope your having pain free days. 🙂 xx

a little lol!

Not only do I suffer from CRPS but dare I say it, I’m a vegetarian. There I said it please dont think any less of me. lol. Anyway I was just thinking back an a funny thought occurred to me recently that is to do with both CRPS and my choice of diet. There are many people out there who have misconceived ideas of how my not eating flesh effects their life and throw idiotic, generic and un-thought of remarks my way as if I have never heard them before.  Anyway my pet hate is this one, probably because I hear it the most.

Annoying Person: How about all of the vegetables that you are murdering, what about their suffering and pain?

Me: Well actually vegetables do not feel pain because research has shown that they do not have a central nervous system and therefore can not feel pain.

Now normally Annoying Person would be stumped on this one but all of a sudden I find myself thinking “THOSE LUCKY BASTARDS!” lol I wish i didn’t need a central nervous system! But then some Vegetarian would probably feel justified in eating me!

CRPS/RSD and Chronic Pain: Should We Stop Living Because It Hurts?

An inspiring post for living with CRPS

RSD Advisory- Where Chronic Pain & Depression Collide

We should not stop living because it hurts! I’ve heard so many times if so and so has Complex Regional Pain Syndrome/Reflex Sympathetic Dystrophy or Chronic Pain in general if they go out for the evening, wear a certain type of clothing, shoes, accessories, move their bodies they can’t possibly hurt that bad. Wrong! It means they are not letting the pain and disability rule their lives. They want to live, laugh, enjoy a moment, make new memories, perhaps experience some of the old.

Too often we become trapped in the cycle of isolating ourselves. Maybe even feeling sorry for ourselves. It’s okay to feel that way from time to time it’s not okay to let the illness take over our lives and that which we love. Family, children, goals, dreams and wishes for ourselves.

If you see someone doing something you wouldn’t do or your body isn’t capable of…

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