Ok, sure her purring and weight isn’t ideal on a bad day where even my clothing can hurt my poor body, But I love my little girl and the comfort that she gives me is worth that extra bit of discomfort. I’m in pain anyway! On a not so bad day, I feel blessed that I am “worthy” of her cuddles. Yeah, any one with a cat knows what I mean by that! On nights when I’m flaring Molly will come to bed with me or climb my window screen until I hobble out of bed to let her in. She has taken to sleeping next to me rather than on me since I’ve developed CRPS. On a bad day she sticks by me and has taken to leading me to the couch and waiting for me to sit before lightly climbing on. She seems to know before I do that I need to rest. Although, I do think she loves having me there to nurse her all night long.
“It is a common condition, patients suffer from it, doctors treat it but Medicare doesn’t acknowledge it. It’s chronic pain. But what causes it and why do traditional drugs seem to have little effect?”
This is the introduction to a news story that was shown on our state edition of the Current Affairs program 7.40. Its really exciting that this show has done a few stories on Chronic Pain already this year and although not exactly about CRPS, It still relates back to the treatments and the health system that I and many other Australians rely on.
I posted about the first story here. Australia’s Pain Epidemic
This story by Mike Sexton and shown on 7.30 South Australia, on Fri, 21 Feb, 2014. Duration: 6min 13sec. It starts as stated above and then leads into some horrifying, yet unsurprising statistics that Medicare (Australia) has found that up to 5% of patients in Gp’s clinics are seeking relief from Chronic Pain. It again mentioned that most Australian’s suffering from Chronic Pain wait 2-3 years for a placement in a pain treatment facility. This leads to Gp’s prescribing more and more opioid pain Medications and leads to dependency. Clearly there is a cycle here that must be broken. I’m hoping that the Website will post a manuscript to this story as it has done in the past so that I can post it.
One exciting thing bit of information that I learnt from the story is of a local research project happening right here in South Australia at the Bionomics Facilities in Hindmarsh, is a focus on Ion channels and their role in Chronic Pain. The story went on to report of an investment of 170 million dollars (Aust) being made into this study by Merck & Co. That is pretty exciting really. I went onto the Bionomics Website and found the following:
“Bionomics has entered into a collaboration with Merck & Co. to develop a novel oral treatment for chronic pain. Chronic pain is a severely debilitating condition with a large unmet medical need. Current analgesic medications which include anti-epileptics, anti-arrhythmics, opioids, NSAID’s and anti-depressants, are either ineffective, associated with a range of dose limiting side effects or have the potential for abuse and addiction. Our novel treatment which is expected to deliver greater efficacy and safety than existing pain medications is directed towards an undisclosed target that has been strongly linked to chronic pain in humans.”
Well Im off to investigate further and see what else I can learn about this trial and even if I can participate in any way. 🙂
10 Ways To Live Well Even With Chronic Illness.
This is a must share! Part of managing CRPS is managing your life and working out how to live around CRPS.
via 10 Ways To Live Well Even With Chronic Illness.
Pain is no fun! Clearly, It really hurts!
How much more fun is it when you compare your pain to Lego?
I found this pain chart recently and thought it was the perfect tool to make things just that little bit more cheerful. I believe we have the option to make the most of a situation or to just be miserable about things for the sake of it. But being miserable kind of sucks so who wants to do that! Adding a little cheer to these situations eases the misery and is by far the better option.
Today my pain is so far sitting at a 6/10. My leg is bloody sore and getting worse, but I’m choosing to ignore it by distracting my self with fun things like this chart. I’m hoping to get my pain under control so I can go out and play in my veggie garden for a while. Sunds borring? two words: Fresh Strawberries! lol. That’s what I look forward to each day, even if its just a little wander around admiring how things are growing. I hope you also have something to motivate you each day. xxx
The Doctors 10/2013
Facebook has been a buzz with the 3 part story about this woman with a severe case of RSD and is full of great info one what RSD is and what it does to us. It also looks at the woman’s story on living with the disease and advice given to her on the diet that she needs to assist her body lower inflammation.
The first part of this film is what all of our family and friends need to see to get whats wrong with us. Im just trying to pin a few of them down. lol. I posted it of Facebook and as suspected most people ignored it, but there was a few that watched it and in come the sympathy and horrified comments. lol. No my limbs do not look like that!Im having trouble loading the footage onto the post but ill work on getting it there, but for now on the above link is to the story on the website for the show
With all the medication and pain killers that we need to survive CRPS, I worry that there is a negative effect on out bodies and what it will do to us long term. One thing I like to do is make yummy, healthy juices that give me a burst of vitamins and help cleanse out any toxins. I wouldn’t say that I am an avid juicer. I tend to juice a lot then not for a while, but I do know that after a few days of it I feel fantastic.
I love growing my own food and its awesome when my juices come from my garden. Today I picked lots of spinach, celery, pea shoots, leaves off of my broccoli and cauliflower plants, parsley and beetroot leaves to make a super healthy juice packed full of greens and all the goodness that come from them. But of course I sweetened the deal a little with some apple and carrots. I love the way fresh juice fills your tummy up and keeps you full for a long time.
Fresh from the garden and my helper, Gemma
Of course I use the pulp from the juicer for compost. Its part of my sustainable philosophy to gardening and eventually what I take from the garden will go back to the soil. Plus with the energy I have from juicing I will have more energy for pottering around and caring for my plants. If only it gave me the strength to dig some new patches this weekend. I think I will need to enlist some help!
Have a great weekend everyone. xx
Everybody needs support when they are going through a hard time and the thing with CRPS is that no matter how supportive friends and family are, there is no way they can fully understand the hell that this disease causes. I really struggled with this in the beginning and felt very isolated and daunted by what I was facing. Then I discovered Facebook Groups for people with CRPS. The Aussie and New Zealander support group was an instant match for me. I’ve joined others that have been great, but This group has become my rock. We laugh, support each other and most of all we don’t judge. Its ok for me to have a whinge when I am at a low. Its welcomed when I post silly but relevant pictures. Probably the best bit is the people I have met in person and the friendships that i have made. How would I have made it this far without Facebook??? No wonder this used to be called the suicide disease, I often wonder if the suicide statistics have changed for CRPS since the birth of the internet and Facebook.
I hope everyone is doing well. Im currently flaring and my pain meds keep me awake. Im hoping to sleep soon. xx