Everybody needs support when they are going through a hard time and the thing with CRPS is that no matter how supportive friends and family are, there is no way they can fully understand the hell that this disease causes. I really struggled with this in the beginning and felt very isolated and daunted by what I was facing. Then I discovered Facebook Groups for people with CRPS. The Aussie and New Zealander support group was an instant match for me. I’ve joined others that have been great, but This group has become my rock. We laugh, support each other and most of all we don’t judge. Its ok for me to have a whinge when I am at a low. Its welcomed when I post silly but relevant pictures. Probably the best bit is the people I have met in person and the friendships that i have made. How would I have made it this far without Facebook??? No wonder this used to be called the suicide disease, I often wonder if the suicide statistics have changed for CRPS since the birth of the internet and Facebook.
I hope everyone is doing well. Im currently flaring and my pain meds keep me awake. Im hoping to sleep soon. xx