I Love My Facebook Groups!

Everybody needs support when they are going through a hard time and the thing with CRPS is that no matter how supportive friends and family are, there is no way they can fully understand the hell that this disease causes.  I really struggled with this in the beginning and felt very isolated and daunted by what I was facing. Then I discovered Facebook Groups for people with CRPS. The Aussie and New Zealander support group was an instant match for me. I’ve joined others that have been great, but This group has become my rock.  We laugh, support each other and most of all we don’t judge. Its ok for me to have a whinge when I am at a low. Its welcomed when I post silly but relevant pictures. Probably the best bit is the people I have met in person and the friendships that i have made. How would I have made it this far without Facebook??? No wonder this used to be called the suicide disease, I often wonder if the suicide statistics have changed for CRPS since the birth of the internet and Facebook.

I hope everyone is doing well. Im currently flaring and my pain meds keep me awake. Im hoping to sleep soon.  xx

Insomnia: Doin it all night long!

One of the worst parts of having CRPS is the insomnia. When I’m in a pain flare is when it’s worst. Last week I didn’t sleep for 3 night’s straight and by the end of the 3rd day I was a mess. Apparently where the cranky nerves run up into the brain, it causes certain areas to get just as angry. One of these is the sleep area of the brain. It’s like my brain knows I’m sooooo tired, but it won’t flick that switch.

I won’t write too much tonight. Oops, its 4.45am so not night after all. But my fingers are just too cranky and not liking me typing. So Ill add a few funny things I found on pinterest to amuse you. They made me smile, but then I understand. I guess in an hour I’ll get up and walk the dog to the café for breakfast….If my feet allow me. Lots of coffee!!!