10 THINGS I WILL NEED: to get me through winter 2019

Winter really is a crappy time of year for us CRPS sufferers. The cold gets into us and causes all types of havoc to our bodies.

So I thought I might share with you the things that I use to help me through the cold. Here goes..

1, My Electric Blanket this is essential when it’s cold. Because we spend a lot of time in bed when we are I’ll. I have also found it the most affordable way of staying warm over night or even through the day when your in bed watching Netflix to avoid the Pain. I often turn it into high for 20min before going to sleep to heat the bedding and mattress. That seems to keep me going through the night.

2, Track Pants and Hoodies. These two go together for me. When I am home I live in this combination. It’s warm, cozy and doesn’t seem to bother my body. I sometimes even sleep in the two.

3, Mittens better than gloves because you can still do things with your fingers, but you can also pull them down to keep your fidgets warm. I have multiple pairs of these and I always get a few new ones every year from eBay for around $1-5 a pair. So cheap that you could have a pair for each day of the week. I really love these and having CRPS in my hands, they really help me out in winter with out hampering finger movement.

4, Heat Packs. There are lots of different forms of heat packs available. My prefered type is a simple wheat bag that you warm in the microwave for 2 min and it moulds to the part of your body that you want to warm. I get very sore and tight muscles after big flares and these are great for those times. Hot water bottles are great as well. But there are also electric ones and heat packs that you press a button and it releases heat somehow. But fore a simple wheat bag does the trick. They are also easy to make if you have a sewing machine. A quick google will lead you to instructions on how to make them.

5, Heating In an ideal world I would have a wood fire to heat my house. I had one when I lived with my parents in the first few years of being sick. But, I don’t have one so I need other ways to warm the house. We have central heating that we don’t use very often. At night I usually sit in my room watching TV, so if I need to heat my room I will start with having my curtains open if it is not too cold out. This raises the room temperature because I get afternoon sun. I then close my blockout curtains at around 4pm and if it’s still cold I use an oil heater for an hour or two to heat the room up. Because I live in an old solid house, I put the heater next to an internal wall and the wall acts as a heater for hours after the heater is turned off. The reason I don’t use the heater more is the cost. I worked out once that it costs about 40c an hour to use the oil heater. Over a day and then a month, that adds up. Especially when your not working. So I only use my heater when it is really necessary.

6, A good pair of slippers. It’s really important to keep your feet warm when it’s cold. I have found that my feet can’t stand cold air on them so I am better off with something on them. I usually wear a pair of slippers boots to keep my whole foot warm. I get them from Kmart or Big W at the start of winter and they are usually around the $10-15 mark. I like them soft inside and either memory foam or well padded on the sole. I also wear them all the time at home.

7, Warm Bedding. When I moved out of my parents house, I made sure that I invested in a good quality, light weight synthetic quilt so that I would have maximum warmth come winter. I am so glad I thought ahead and got all of my bedding cheap in the boxing day sales. AfterPay helped me to be able to afford it as well. I also have a couple of patchwork quilts that my Nan made for me. So I have maximum warmth without the weight hurting me. It’s definately a must.

8. Lap rugs. I love being. Wrapped up in a warm blanket while watching tv in the lounge. I have either a patchwork blanket (My Nan keeps me well stocked) or a knitted rug. I know some people like electric throws, but I haven’t tried one yet. It could be worth it though. I just use a heat pack and a blanket though.

9. Warm Cups Of Tea. I drink a lot of tea in the winter. Plus a coffee in the mornings. I love wrapping my hands around the warm cup. It’s so good for my hands and my soul.

10. My cat Molly. Need I say any more. She keeps me warm when she is on my lap and keeps me company when I’m in bed. She is the perfect companion.

So there is is. My top 10 things to get you through a winter with CRPS.

I hope this helps in some way.

Stay pain free. Xx

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Can I Still LOVE Winter?

Can I still love winter? I hope so. CRPS is so hard on the body in nice weather; hot weather was harsh and coped by hiding inside where it was cool and going to the beach in the evening and soaking my body back to a comfortable temperature. Now my second winter with CRPS is here and I’m not holding up to well.
Last year I just thought it was the natural progression of CRPS. The disease seemed to spiral downhill so fast. I was struggling to walk, I thought I was going to end up in a wheel chair, My neurological symptoms were worsening, I couldn’t hold a knife and fork and there were days on end where I suffered at home in misery. But then I had my first Ketamine infusion and then another and things got better. Looking back around the same time winter broke and along came spring.
So it wasn’t all just my body getting taken over by CRPS, it was also winter. Yay!!!! Something to look forwards to each year… Not.
So here I am at the beginning of winter and my body is not happy. It will be interesting to see how I hold up. The only difference this year is that I have more of a hold on how to cope. I love winter so much. I live on the South Australian coast in a beautiful part of the country and I love how fierce the ocean is during winter. I love rainy winter days where I snuggle up on the couch drinking tea and watching movies. I’m sure I will get a few of those days this year.
I’m determined to still love winter and to make the most of my time even though I might be in hell pain wise. I’m studying at the moment and hoping to start my Bachelor of Health Science (Nutritional Medicine) and I’m determined to blog more. At the moment there are days where I’m scared of what’s to come but I’m trying to make the most of things. It wasn’t all bad last winter after all.
So that’s where I’m at, at the moment. I’m ok though. I’m not looking for sympathy; I think others deserve it more. I would love to hear how all of you cope with winter?
Hope your all pain free xx